I love Mondays. I know that isn't normal, but Monday is the day Destry has his violin lesson and symphony rehearsal and I go with him. I put the little ones down for nap, leave them with big sis, and then Alan is home before they wake up. Meanwhile, I get to grade essays, prepare my speech lectures, write a blog post, waste time on facebook, or read a book in peace and quiet while waiting on Destry.
The book I picked up most recently from the library (conveniently located next door to his lesson--how fun is that?!) is called
Elijah's Cup: A Family's Journey Into the Community and Culture of High-Functioning Autism and Asperger's Syndrome by Valerie Paradiz. Overall, I really enjoyed this mother's account of life with her son as she learned more about him and about the history and culture of autism. I wasn't sure I would finish it at first as she writes with a rather flowery prose and it was slow getting started, but it got a lot better.
I didn't sense that she was writing from a position of professing faith, but I did find her title interesting. Autism was part of the cup her son Elijah was given in this life. All of our cups look different but as she said "Elijah's cup is full. He has his special interests. He has his comedy and his ups and his downs. He has his autistic mentors and his friends" (199). Like Jesus Himself, a parent might be tempted to ask the Lord to "let this cup pass from me" but Paradiz comes to recognize the gifts in autism and declares Elijah's cup to be full even pointing out the neurotypical culture's tendency to be preoccupied with "societal concerns, delusions of superiority and obsession with conformity".
I think I most enjoyed Paradiz's exploration into famous people who have had autism including pianist Glenn Gould, scientist Albert Einstein, comedian Andy Kaufman, and artist Andy Warhol. I found it fascinating to read about these people's "eccentricities" and how they fit within the autism spectrum. Maybe it's just my ignorance on the subject, but I would have never interpreted Warhol's Campbell's soup series as "an autistic predilection for the serial and the literal.
Autism is a life of profound serial experience. It is a life of cataloguing repeated events and variations of events. Repeated images. Repeated language. Repeated movements and repeated gestures. Its expression is found, classically and clinically, in the lining up of things in rows, side by side. . .the repetition is compelling, a mirror of internal drama and development" (159).
I also enjoyed Paradiz's synopsis of what she learned about autism researchers including Hans Asperger, Bruno Bettelheim, and Leo Kanner. It was interesting that some suspect Asperger himself had the very syndrome that wears his name. "Asperger himself once said that one had to be a little autistic oneself in order to understand autism" (68).
I was also fascinated to learn that parents and siblings of autistic children are frequently called "cousins" as they possess autistic shadow traits, sometimes called broader autism phenotype (BAP). The author of this book recognized that she, her father, and her grandmother were all cousins and it helped her to understand herself better and to mend her strained relationship with her father as she had spent most of her life feeling ignored and overlooked by him as he got absorbed in his interests or would talk with her only about what he found fascinating (such as counting cards in blackjack).
Finally, as a "neurotypical" myself, it was enlightening to consider society's expectation of conformity and how that expectation affects those with autism--or even to consider if this expectation is good. As one of her friends said "I have exactly as many relationships as I want. I relate only as myself, only in ways that are authentic to me. I value people only as themselves, not for their role or status, and not because I need someone to fill empty spaces in my life. Are these the severe deficits in communicating and relating that I keep reading about? Actually, there are some pretty serious deficits, but not in my ability to care. There are deficits in my ability to recognize people who aren't able to care, people who aren't authentic, who don't value me as myself, or who aren't connected at their own cores. It's hard for me to tell when someone is lying. It took me a very long time, and a lot of painful experience, just to learn what lying is" (182).
I was challenged when another of the author's autistic friends observed "If I know that I do not understand people and I devote all this energy and effort to figuring them out, do I have more or less empathy than people who do not understand me, but who do not even notice that they don't understand me?" (190) As we become more aware of the ways the Lord made us to be different from one another, I think it is good to learn more so we can better understand and appreciate one another rather than trying to fit everyone into the same mold. I'm trying to decide what I think of the following quotes which seem to imply our society is more concerned with making everyone seem the same--to fit in--than it is with equipping each of us to effectively use the gifts we have been given.
"Today the main emphasis in the education of Asperger children is placed on learning social skills, such as how to take turns in conversation or how to broach a new topic gracefully" (151).
"I learned that autistics feel they can be helped with more important things than constantly making eye contact or mimicking what is thought to be appropriate social behavior. I learned that more than anything else, they need help in identifying and communicating their needs, monitoring their levels of sensory stimulation, and knowing how and when to remove themselves from overwhelming situations before they reach a 'meltdown state'" (140).
All in all, it was a very interesting and enlightening book and I'm glad I read it.